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Medical Care Expense Assistance | National Organization for Rare Disorders

7 Kenosia Avenue, Danbury, CT 06810

Eligibility
US citizen or permanent resident of the United States for at least 6 months with evidence of residency; Must meet income/financial guidelines; Provide care for an individual with a confirmed rare disease diagnosis.
Required documents
Photo ID Proof of residence Proof of income Additional documentation may be required.
Hours
Monday to Thursday, 9:30 am - 6:00 pm Friday, 9:30 am - 5:00 pm
203-263-9938
Fax·

Fax

844-259-7178
Voice·

Spanish

203-616-4328
Voice·

Caregiver Respite Program

800-999-6673
Voice·

Toll Free

203-744-0100
Voice·

Main

Languages
English, Spanish; Interpreters for additional languages can be provided.
Application process
(1) Call 800-999-6673 or email [email protected] for additional information. (2) Call 844-259-7178 for help in Spanish.
Fees
No Fees
Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.
Last Assured
03/25/2025
Providing organization
National Organization for Rare Disorders
Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.
Medical Care Expense Assistance | National Organization for Rare Disorders