Respite Care Subsidies | National Organization for Rare Disorders
7 Kenosia Avenue, Danbury, CT 06810
Eligibility
US citizen or permanent resident of the United States for at least 6 months with evidence of residency; Must meet income/financial guidelines; Provide care for an individual with a confirmed rare disease diagnosis.
Required documents
Photo ID
Proof of residence
Proof of income
Additional documentation may be required.
Hours
Monday to Thursday, 9:30 am - 6:00 pm
Friday, 9:30 am - 5:00 pm
To access this service, contact:
General Email
844-259-7178
Voice·
Spanish
800-999-6673
Voice·
Toll Free
203-263-9938
Fax·
Fax
203-744-0100
Voice·
Main
203-616-4328
Voice·
Caregiver Respite Program
Websitehttps://rarediseases.org
Languages
English, Spanish; Interpreters for additional languages can be provided
Application process
(1) Call 800-999-6673 or email [email protected] for additional information. (2) Call 844-259-7178 for help in Spanish.
Fees
No fees
Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.
Last Assured
03/25/2025
What's Here
Providing organization
National Organization for Rare Disorders
Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.