Specialized Information and Referral | National Organization for Rare Disorders
Resource Name:Specialized Information and Referral | National Organization for Rare Disorders
address
7 Kenosia Avenue, Danbury, CT 06810
Eligibility
Persons with rare diseases and their caregivers
Required documents
None
Hours
Monday to Thursday, 7:30 am - 6:00 pm
Friday, 7:30 am - 5:00 pm
203-616-4328
Voice
·Caregiver Respite Program
800-999-6673
Voice
·Toll Free
203-263-9938
Fax
·Fax
203-744-0100
Voice
·Main
844-259-7178
Voice
·Spanish
Website
https://rarediseases.orgLanguages
English, Spanish; Interpreters for additional languages can be provided.
Application process
(1) Call 800-999-6673 or email [email protected] for additional information. (2) Call for Spanish at 844-259-7178 for more information.
Fees
No fees
Service area
USA
Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.
Last Assured
07/08/2026
What's Here
Providing organization
National Organization for Rare Disorders
Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.