Specialized Information and Referral | National Organization for Rare Disorders

Connect persons with rare diseases with other patient assistance programs

Physical Address

7 Kenosia Avenue, Danbury, CT 06810

Hours

Monday to Thursday, 9:30 am - 6:00 pm; Friday, 9:30 am - 5:00 pm

Application process

(1) Call 800-999-6673 or email [email protected] for additional information. (2) Call for Spanish at 844-259-7178 for more information.

Fee

No fees

Eligibility

Persons with rare diseases and their caregivers

Languages

English, Spanish; Interpreters for additional languages can be provided.

Agency info

National Organization for Rare Disorders

Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.